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Journal of Child Health Care
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Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: a qualitative study

Mark Avis, BA, MSc, RMN, RGN, Cert Ed

School of Nursing, University of Nottingham, Nottingham, UK, mark.avis{at}nottingham.ac.uk

Rachel Reardon, MNursSci, RNC

Child Health Nursing, Newcastle-upon-Tyne University Hospital, Newcastle-upon-Tyne, UK

This article reports a qualitative study designed to explore parents' views on how their child with additional needs had been cared for by hospital nursing staff, focusing on how well their own and their child's needs had been identified and met. Twelve interviews with parents of children with additional needs and a thematic analysis of the interview data was conducted. Four themes were developed to provide an insight into parents' views about their experiences: their prior experiences of hospital care, including the process of being told the original diagnosis; communication with staff; nurse—parent relationships; and perceptions of nurses and nursing care. It concludes that parents experience some difficulties in developing a trusting relationship with the nurses caring for their child with additional needs. Parents perceive that nurses are not always able to recognize and respond to their needs when caring for their child. Failure to address these needs can interfere with the development of effective nurse—parent relationships.

Key Words: family centred care • nurse—family relationships • learning disabilities • complex care

Journal of Child Health Care, Vol. 12, No. 1, 7-17 (2008)
DOI: 10.1177/1367493507085615
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