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Journal of Child Health Care
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`A life on hold': adolescents' experiences of stem cell transplantation in a long-term perspective

Ulla Forinder, PhD

Licensed Psychotherapist, Department of Health Social Work and Department of Pediatrics, Karolinska University Hospital; Department of Social Work, Stockholm University, Stockholm, Sweden, Ulla.Forinder{at}socarb.su.se

Ebba Posse, BSc

Licensed Psychotherapist, Karolinska University Hospital; Medical Social Worker, Children's Department, Karolinska University Hospital, Stockholm, Sweden

Stem cell transplantation is one of the treatment methods for cancer in children and adolescents which has resulted in a positive outcome. Unfortunately this method of treatment brings with it a number of late effects such as short stature, cognitive effects and infertility. However, a majority of children and adolescents experience a good quality of life. By examining their medical records this study has gained a deeper understanding of the situation for the minority of young people who describe themselves as suffering severe mental distress which they relate to their illness and treatment. The population comprised seven adolescents who sought psychotherapeutic support several years after treatment. They describe how they are affected by the feeling of being different, the loss of contact with friends and their dependence on parents. The study points to the need for long-term psychosocial support for children and adolescents who have undergone stem cell transplantation.

Key Words: adolescence • psychosocial support • stem cell transplantation

Journal of Child Health Care, Vol. 12, No. 4, 301-313 (2008)
DOI: 10.1177/1367493508096205
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