This Article Full Text (PDF) References Alert me when this article is cited Alert me if a correction is posted Citation Map Services Email this article to a friend Similar articles in this journal Similar articles in PubMed Alert me to new issues of the journal Add to Saved Citations Download to citation manager Request Permissions Request Reprints Add to My Marked Citations Citing Articles Citing Articles via Scopus Google Scholar Articles by McNamara, D. G. Articles by Byrnes, C. A. PubMed PubMed Citation Articles by McNamara, D. G. Articles by Byrnes, C. A. Social Bookmarking                         What's this?

The perceptions and preferences of parents of children with tracheostomies in a study of humidification therapy

Starship Children's Hospital and PhD Candidate, Department of Paediatrics, University of Auckland, New Zealand, d.mcnamara{at}auckland.ac.nz

Annette R. Dickinson, RGON , PhD

AUT Uiversity and Starship Children's Hospital Division of Health Care Practice, Auckland, New Zealand

Catherine A. Byrnes, MD, FRACP, MBChB, GCCE

Starship Children's Hospital Division of Health Care Practice and Department of Paediatrics, University of Auckland, New Zealand

This article reports a grounded theory study which was the qualitative phase of a randomized-controlled trial in children with tracheostomies comparing two techniques for providing humidified inspired gases. Semi-structured interviews were conducted with eight mothers of children with tracheostomies recruited from the trial, one mother who was not involved in the trial and four experienced nurses. Data were analysed using open, selective and theoretical coding. A core category was identified of parents managing the child’s care in response to a set of problematic and constraining states. Parents were seen to utilize strategies of constant checking, becoming the expert, the family pulling together and electing to use preferred technology. The findings of this study mirror those of previous studies and reinforce the primacy of caregivers as managers of their child’s health care. Mothers elected to use or not use a given technology within this context, utilizing a process of balancing.

Key Words: chronic illness • grounded theory • paediatric • randomized controlled trials • technology-dependent child

Journal of Child Health Care, Vol. 13, No. 3, 179-197 (2009)
DOI: 10.1177/1367493509336686


CiteULike    Complore    Connotea    Del.icio.us    Digg    Reddit    Technorati    Twitter    What's this?