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‘They wouldn’t know how it feels . . .’: characteristics of quality care from young people’s perspectives: a participatory research project

Anglia Ruskin University, UK, tina.moules{at}anglia.ac.uk

Literature suggests there is a need to hear from children themselves about the quality of healthcare they receive and, although their views are increasingly sought, little is known about children’s definitions of ‘high or low quality care’. This article reports on a participatory, qualitative study that set out to explore with children and young people whether they could be involved in monitoring the quality of hospital care. Nine young people played an active role in the research process, collecting data from an additional 129 participants aged between 9 and 14. Five characteristics of quality care were identified: ‘technical expertise’, ‘friendly staff ’, ‘respect’, ‘choice’ and ‘explanations’.

Key Words: children’s participation • children’s rights • patient participation • quality of care

This version was published on December 1, 2009

Journal of Child Health Care, Vol. 13, No. 4, 322-332 (2009)
DOI: 10.1177/1367493509344824


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