Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

The Diabetes Educator

Sign In to gain access to subscriptions and/or personal tools.
Journal of Child Health Care
This Article
Right arrow Full Text (PDF)
Right arrow References
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Zipitis, C. S.
Right arrow Articles by Paschalides, C.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Zipitis, C. S.
Right arrow Articles by Paschalides, C.
Social Bookmarking
Add to CiteULike   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati  
What's this?

Caring for a Child with Spina Bifida: Understanding the Child and Carer

Christos S. Zipitis, MBChB(Hons)

Medical House Officer, Manchester Royal Infirmary, Manchester, UK

Constantinos Paschalides, MBChB

Medical House Officer, Hope Hospital, Salford, UK

Spina bifida is a common congenital abnormality, which causes significant physical and psychological morbidity in affected children and which also affects their carers. This small-scale study looked at the health problems of a child with a myelomeningocoele. It also addresses the psychosocial problems that his mother, his main carer, faced and the social networks involved in his care. The evidence supporting various aspects of spina bifida prevention and management is explored. Furthermore, a literature review is included, with regards to physical and psychological issues for child and carer. This study aims to raise awareness of the problems faced by children with myelomeningocoele and their families. In particular, we aim to educate health care professionals on the importance of perceived stress by carers of such children, and suggest ways to reduce psychosocial morbidity.

Key Words: carer • myelomeningocoele • perceived stress • spina bifida • support

Journal of Child Health Care, Vol. 7, No. 2, 101-112 (2003)
DOI: 10.1177/1367493503007002004
Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati    What's this?


This article has been cited by other articles:


Home page
 Nurs EthicsHome page
H. Dogan and S. Sahinoglu
Fetuses with Neural Tube Defects: ethical approaches and the role of health care professionals in Turkish health care institutions
Nursing Ethics, January 1, 2005; 12(1): 59 - 78.
[Abstract] [PDF]