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Differences and similarities between mothers’ and fathers’ experiences of parenting a child with a disability

diane.pelchat{at}umontreal.ca

Hélène Lefebvre, PhD

Interdisciplinary Team for Family Research (ERIFAM), Faculty of Nursing, University of Montreal, Montreal Centre for Interdisciplinary Research in Rehabilitation (CRIR)

Michel Perreault, PhD

Health and Prevention Social Research Group (GRASP), Faculty of Nursing, University of Montreal

This qualitative study used focus groups to identify the differences and similarities in the experiences of parents of children with a disability. Two main themes emerged, showing the ways in which the mothers and fathers are alike or different. One concerns roles, actual and expected, in the various subsystems of family life. The other concerns the normalization and stigmatization that arise because of the child’s problem. Mothers tend to score better interms of interpersonal and group communications. It would seem that the fathers’ expectations are harder to fulfil than the mothers’. The fathers’ expectations are attuned to the outer world; the actual day-to-day tasks related to the child’s care are not their priority. The mothers are less demanding and their expectations are more self-focused. Interestingly, these families are similar to families of children without a disability; however,the difficulties they experience are accentuated by the presence of a child with a problem.

Key Words: difference mother/father • disability • Down’s Syndrome • normalization/stigmatization • roles and expected roles

Journal of Child Health Care, Vol. 7, No. 4, 231-247 (2003)
DOI: 10.1177/13674935030074001


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